Sunday, May 1, 2016

May 1, 2016

In honor of melanoma awareness month, I couldn’t decide if I should pay tribute, provide encouragement, or offer warning. So I think I’ll do all three.  And I’ll start with this:

To my loves who live  on in our hearts, thank you  Thank you for the privilege of witnessing your fights. Thank you for showing us all what it means to be strong. Thank you for the laughter, the smiles, the expressions of love that eased all of our pain. You have shown us all how beautiful raw humanity can be, and that when you peel away the layers of life’s unimportance, you are just left with love.

To my warrior brothers and sisters in the midst of battle, keep going. One step at a time. One surgery at a time, one treatment at a time, one nightmare-filled restless night at a time, one desperate agonizing wait for scan results at a time. You can do it.  In the midst of the pain and the fear, stay focused on the hope.  Keep your eyes open to the love you are being shown, the clear sense of life’s priorities with which you’ve now been gifted, and the fact that you are now, and will forever remain, the strongest people I know. The nightmare will end and you will be free again, I promise. And when you are, you will revel in the beautiful lesson you’ve learned, you will be constantly amazed by everyday life, and you will know, with certainty, what true happiness means.

To my survivor soulmates, celebrate. Celebrate and advocate. Keep those amazing lessons close to your hearts, and never forget that now is the time to thrive. Thank you for your continued friendships and support. Thank you for picking me back up on those days where my own lessons are just out of reach. And please, spread your wisdom and your love to others who are not as far along in their own journeys. They need you just as much as I do.  The world is a better place because every single one of you is still in it.

To the doctors who are saving our lives, gratitude does not even begin to cover it. It is only because of your commitment and dedication to finding improved treatment options that we are still here. It is you to whom we pray. They are your faces we see in our minds as we beg desperately to remain. It is your every word, every touch, every encouragement to which we cling. And it is you who are delivering us from evil.  Keep going, never be satisfied; we are making great progress but there’s more work to be done. We need you. Our children need you. And we are thankful for you with overwhelming awe every single morning we open our eyes.

To my amazing friends and loved ones who fit none of the categories above, you’re the best. It is you who give me a constant reminder of what it means to be alive. It’s your laughter and light and fun and love and everyday conversations that kept me from traversing that fine line between hope and despair. It is you who brought me back from the breach to live again. Thank you for your strength, your shoulders, your guidance, your love, and your unwavering hope. It is you who are my greatest delights.  And to my sweet Jeff and perfect baby Kai (who is now 5!), you are the reason for everything.

To everyone reading this, check yourselves and protect yourselves. Check for irregular moles and lesions – even let a dermatologist do it for you, at least twice per year. Always wear sunscreen, and especially protect those little ones.  Just one blistering childhood burn doubles your chance of developing melanoma. Stay in the shade, and protect your skin. Stop tanning!  It isn’t beautiful, it’s deadly. Learn more here: www.melanoma.org and here: www.curemelanoma.org and here: www.melanomainternational.org. Find information about clinical trials here: www.bethesdatrials.cancer.gov and here: www.clinicaltrials.gov. And if you or anyone you know needs help, reach out.  I’m here for you as are hundreds of others, and we would be honored to know you.


It’s been 5 years since I was told I had 6 months to live, and it’s been 3 years since that first amazing scan showing no evidence of disease. But it is only recently that I have truly been brought back to life.  It is only recently that I’ve remembered what it feels like to be really alive.  The years of living with a self-preserving disconnect between body and mind are starting to dissipate, and I am becoming whole once again. And all the parts of me that went to sleep during the past 5 years are starting to wake up.  All the time I spent hoping against hope just to survive, has been answered 1,000 times now that I also remember what it means to be alive.  And for that I am thankful. Melanoma, nobody wants to meet you, but for those of us who do: for every single life lesson you've taught me, and for every beautiful being I am blessed to know more fully because of you, I am thankful. 

24 comments:

  1. thank you for sharing your words and thoughts today. i have been fighting melanoma for 6 years and am about to start aggressive treatment as it has come back again in my lung. i needed your words today on the NED. thank you. a fellow fighter.

    ReplyDelete
    Replies
    1. Alli, Stay strong! Is there anything I can do for you? You got this, my friend, I'm sure of it!

      Delete


    2. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Robert Mary
      I’m a citizen of United Kingdom, My younger sister was Sicking of
      breast cancer and her name is Robert Jane, I and my family have taking
      her to all kind of hospital in UK still yet no good result. I decided
      to go to the internet and search for cancer cure so that was how I
      find a lady called Sarah peter she was testifies to the world about
      the goodness of a herbal man who has the root and half to cure all
      kind of disease and the herbal email was there. So I decided to
      contact the herbal man for my younger sister help to cure her breast
      cancer. I contacted him and told him my problem he told me that I
      should not worry that my sister cancer will be cure, he told me that
      there is a medicine that he is going to give me that I will cook it
      and give it to my sister to drink for one week, so I ask how can I
      receive the cure that I am in UK, he told me
      That I will pay for the delivery service. The courier service can
      transport it to me so he told me the amount I will pay, so my dad paid
      for the delivery fee. two days later I receive the cure from the
      courier service so I used it as the herbal man instructed me to,
      before the week complete my sister cancer was healed and it was like a
      dream to me not knowing that it was physical I and my family were very
      happy about the miracle of Doctor so my dad wanted to pay him 5
      million us dollars the herbal man did not accept the offer from my dad,but I don't know why he did not accept the offer,he only said
      I should tell the world about him and his miracle he perform so am now
      here to tell the world about him if you or your relative is having any
      kind of disease that you can't get from the hospital please contact
      Dr.ogididanspelltemple@gmail.com or WhatsApp him +2347067393105,message him on instragram dr.ogididanspelltemple for the cure, he will help you out
      with any problems you have.To get more information you can message me via email robertmary8947@gmail.com

      Delete
    3. I’m giving a testimony about Dr. KOKOBI the great Herbalist, he has the
      cure to all manner of diseases, he cured my  breast cancer, though I
      went through different website I saw different testimonies about
      different spell casters and herbalist, I was like: ‘Many people have
      the breast cancer remedy, So why are people still suffering from it?’ I thought of
      it, then I decided to contact kokobiherbalremedycentre@gmail.com , I didn’t believe him that
      much, I just wanted to give him a try, he replied my mail and Needed
      some Information about me, then I sent them to him, he prepared it
      (CURE) and sent it to Airfreight Online Courier Service for delivery,
      he gave my details to the Courier Office, they told me that 3-5 days I
      will receive the package and i took the medicine as prescribed by him
      and I went for check-up 1 week after finishing the medicine, I was
      tested breast cancer negative, if you are breast cancer patient or any cancer patient at all. Do me
      a favour for you to contact him and I will try my possible best to make
      sure you get cured, when you contact him, make sure you tell him that
      I referenced you.. contact him via: kokobiherbalremedycentre@gmail.com You can also message him on whatsapp +254746618873 and for more info message me @ pamela.drews77@gmail.com

      Delete
    4. I was having Herpes Simplex Virus then i came across a review of people saying that they got treated from Herpes Simplex Virus by Dr VOODOO., So i gave a try by contacting him through his email and explain my problem to him. He send natural medicine herbs to me and told me all the things I need to do and also give me instructions to take the medicine, which I followed properly. Before I knew what is happening after two weeks the HERPES SIMPLEX VIRUS that was in my body got vanished . so if you are also heart broken by any deadly diseases like HERPES HIV, shingles,low sperm count or bringing back your ex lover, this great man is extremely the best in which I have seen if you also need a help, you can also email him at voodoospelltemple66@gmail.com Add Dr voodoo on whatsApp +2348140120719

      Delete
    5. This is another testimony on how Chief Dr Lucky cured my HIV disease. Do you need a cure for your HIV disease? Do you want to be cured from your cancer disease? Or you want to be free from any type of disease. Kindly visit his website https://chiefdrluckyherbaltherapy.wordpress.com/ . He just cured my HIV disease and I’m very grateful to him, he is the only herbalist that can cure you.  
      WhatsApp number : +2348132777335 
      Via Email : chiefdrlucky@gmail.com
      Thank you all for reading,
      God bless"

      Delete
  2. Wow. Amazing. You have put into words precisely how it's felt for me the last 7 years! Thank you from a fellow stage 3C melanoma warrior!

    ReplyDelete
    Replies
    1. Thank YOU! And share that story! The more hope out there the better!

      Delete
  3. Jamie, so grateful to read of your wonderful NED status...and my husband too...also NED! Praises be, and I so know the gratitude you feel. Our quickie Melanoma Monday update is here: http://twinfatuation.blogspot.com/2016/05/only-1365th.html

    Continued love and health to you...for many, many melanoma free years ahead! <3

    ReplyDelete
    Replies
    1. So happy to see you again Cheryl! And so happy for your husband! :) Continued love and health to the both of you as well!

      Delete
    2. Hey Jamie -- ages and ages since we talked. We worked together at the Republican place which shall not be named but I wanted to say I heard about this and wanted to say how glad I am that you are doing well. Take care.

      M in Toronto

      Delete
    3. I have been suffering from (HERPES SIMPLEX VIRUS) disease for the past four years and had constant pain. During the first year, I had faith in God that i would be healed someday.This disease started circulating all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from Herpes Simplex Virus by this by Dr voodoo and she also gave the email address of this man and advise anyone to contact him for any kind of problem that he would be of help, so i wrote to Dr voodoo telling him about my (Herpes Virus) he told me not to worry that i was going to be cured!! Though i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the Dr voodoo assured me, after some time i went to my doctor for test and it confirmed that i have be finally healed behold it was TRUE, So friends if anyone have such problem and need help contact Dr voodoo on his email: voodoospelltemple66@gmail.com Add Dr voodoo on whatsApp +2348140120719

      Delete
  4. Jamie, I was recently diagnosed with Melanoma and would love to ask a question off-line. Is there a way to send you a pm or email? I hope you are well and thanks for being such a wonderful resource for others starting down the path.

    ReplyDelete
  5. Hi, diagnosed with malignant melanoma 3 weeks ago, had a wide local excision 5 days ago. Unfortunately I have no real family to turn to. I am estranged from father, stepmother, 1 brother and 1 sister. They know, yet still choose to be estranged. Have a husband who for all intents and purposes, I may as well be single and a 17 year old daughter whom I don't want to worry so I am not telling her much. So, basically alone and that stinks.... I read alot of blogs, it gives me comfort, this is the first time I've commented. Good luck to all!

    ReplyDelete
  6. Jaime,
    I was just reading an article in Smithsonian Magazine about checkpoint inhibitors and thought of you, your family and your journey which I read in your blog all those years ago.
    So happy to find this post and hear of your update even though it has been some time since this post.
    Take care,
    Jacquie

    ReplyDelete


  7. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Robert Mary
    I’m a citizen of United Kingdom, My younger sister was Sicking of
    breast cancer and her name is Robert Jane, I and my family have taking
    her to all kind of hospital in UK still yet no good result. I decided
    to go to the internet and search for cancer cure so that was how I
    find a lady called Sarah peter she was testifies to the world about
    the goodness of a herbal man who has the root and half to cure all
    kind of disease and the herbal email was there. So I decided to
    contact the herbal man for my younger sister help to cure her breast
    cancer. I contacted him and told him my problem he told me that I
    should not worry that my sister cancer will be cure, he told me that
    there is a medicine that he is going to give me that I will cook it
    and give it to my sister to drink for one week, so I ask how can I
    receive the cure that I am in UK, he told me
    That I will pay for the delivery service. The courier service can
    transport it to me so he told me the amount I will pay, so my dad paid
    for the delivery fee. two days later I receive the cure from the
    courier service so I used it as the herbal man instructed me to,
    before the week complete my sister cancer was healed and it was like a
    dream to me not knowing that it was physical I and my family were very
    happy about the miracle of Doctor so my dad wanted to pay him 5
    million us dollars the herbal man did not accept the offer from my dad,but I don't know why he did not accept the offer,he only said
    I should tell the world about him and his miracle he perform so am now
    here to tell the world about him if you or your relative is having any
    kind of disease that you can't get from the hospital please contact
    Dr.ogididanspelltemple@gmail.com or WhatsApp him +2347067393105,message him on instragram dr.ogididanspelltemple for the cure, he will help you out
    with any problems you have.To get more information you can message me via email robertmary8947@gmail.com

    ReplyDelete
  8. It has been some time since I visited website with such high quality information. Thank you so much for providing such helpful information. This is really informative and I will for sure refer my friends the same. Thanks.
    Back Pain Treatment

    ReplyDelete
  9. I'M TOTALLY FREE FROM HEPATITIS B. FOR OVER 5 YEARS LIVING WITH  IT
     I’m Stephenie Brown, i was diagnosed with Hepatitis B 3 years ago, i lived in pain with the knowledge that i wasn’t going to ever be well again i contacted so many herbal doctors about herbs to cure me and ended up spending some amount of money but i never got better i was determined to get my lifestyle back and to be able to do things am restricted from doing so one day i saw a lady’s post on how Herbalist Dr. JAMES cured her  from Hiv virus with his herbal medicine. I contacted the same Doctor through his email....drjamesherbalmix@gmail.com....we spoke, i told him all that i was going through and he told me not to worry that everything will be more better again so he prepared a herbal medicine and send it to me through DHL courier company and told me the dosage,after 13 days of completing the herbal medicine,i was totally free from Hepatitis,so I went to see a doctor for a blood test ,After taking a sample of my blood for the test the result came out negative,i just can’t deny that i’m the most happiest woman on earth this very moment ,i’m so happy and thanks to Herbalist Doctor JAMES
    He also told me he cures  diseases   such as Melanoma ,Cancer,Weak Erection,Wart Remover,Hpv,Herpes,Fibromyalgia,Hiv,Hepatitis b,Liver/Kidney Inflammatory,Epilepsy,Infertility,Fibroid,Diabetes,Dercum,Copd,Back pain,Nephrotic syndrome,
     AND MORE contact him  on
    Email..... DRJAMESHERBALMIX@GMAIL.COM

    ReplyDelete
  10. But Dr. Itua, Traditional Herbal Practitioner in Africa, has cured HIV which is extracted from some rare herbs. It is highly potential to cure AIDS 100% without any residue. Dr Itua herbal medicine has already passed various blogs on how he uses his powerful herbs to heal all kinds of diseases such as. Herpes, HIV,,Cushing’s disease,Heart failure,Multiple Sclerosis,Hypertension,Colo_Rectal Cancer, Diabetes, Hepatitis,Hpv,Weak ErectionLyme Disease,Blood Cancer,Alzheimer’s disease,Bechet’s disease,Crohn’s disease,Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Fibromyalgia,Fluoroqquinolone Toxicity,Brain Cancer,Breast Cancer,Lung Cancer,Kidney Cancer,Syndrome Fibrodysplasia Ossificans ProgresS sclerosis,Seizures,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic diseases.Hiv_ Aids,Herpe ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,Dementia.,Wart Remover,Cold Sore, Epilepsy, also his herbal boost immune system as well. I'm telling this because he uses his herbal medicine to cure me from hepatitis B and HIV, which I have been living on for 9 months now with no side effects. Herbal Medicine is just as good when drinking it although i have to use the restroom after drinking it which I don't really care about because i just want to get the virus out of my body, I will recommend Dr Itua to anyone sick out here to contact Dr Itua with this following information.Email...drituaherbalcenter@gmail.com  /  
    Whatsapp Or Call...+2348149277967.
    He might be late to respond because he is always busy with patents, but he will surely get back to you with a positive response.

    ReplyDelete
  11. https://pokerpelangi-com.blogspot.com/

    ReplyDelete
  12. This is so amazing and so much reminds me of my Dad’s battle with Parkinson's disease and stroke. I think the biggest trauma was much on the family. You know, watching your agile father became so fragile and a shadow of himself. He became dependent on grand kids to move him around and feed too. It was really heartbreaking for everyone! But each time I remember the story, I become so thankful that we were opportune to learn about Dr. OVIE through the internet and used his herbal medicine which helped my Dad. Though I read a lot of negative things about herbs for Parkinson's disease and attendant effects of stroke treatment, I can tell you that the right herbal medicine is still out there! We found ours through Ovie. My Dad was 75 when he had an attack with Parkinson's disease which led to stroke. We used all recommended over-the-counter medicines for him for a period of 3 years, yet, there was no cure and to think those drugs had very bad side effects on him became our new challenge. When we switched to homeopathic treatment, he got a little better. Our breakthrough was through Dr. OVIE Herbal Medicine. That medicine was a miracle our family will never forget. In 2 months of use, his body was totally revived! His stroke vanished while Parkinson's disease was completely cured. Dad turned 87 august 01 th and is still very strong. Occasionally tending his garden with grandchildren. I will say, give Ovie a try, you never know your breakthrough from Parkinson's disease and stroke is very close to you an email away. ontact Dr Ovie via email> ovie.miraclemedicine1@gmail.com or contact Dr Ovie on yahoo email> ovie.miraclemedicine1@yahoo.com contact Dr.Ovie on his website now https://oviemiraclemedicin.wixsite.com/mysite Call or WhatsApp Dr on +2349056393169 aaDr Ovie is also specialize in curing the following below,*PARKINSON DISEASE
    *CANCER
    *STROKE
    *INFERTILITY
    *HEART DISEASE
    *HIV
    *COLD SORES
    *DIABETES*LUPUS DISEASE*HPV*HSV1&2.

    ReplyDelete
  13. I was diagnosed as HEPATITIS B carrier in 2013 with fibrosis of the
    liver already present. I started on antiviral medications which
    reduced the viral load initially. After a couple of years the virus
    became resistant. I started on HEPATITIS B Herbal treatment from
    ULTIMATE LIFE CLINIC there website is https://ultimatelifeclinic.com in March, 2020. Their
    treatment totally reversed the virus. I did another blood test after
    the 6 months long treatment and tested negative to the virus. Amazing
    treatment! This treatment is a breakthrough for all HBV carriers.

    ReplyDelete