Tuesday, April 19, 2011

April 19

Back again and a private room!  It’s a wonderful beginning to the final hurrah. I’m all hooked up to the IV and they’ve begun the pre-medications.  First dose of IL-2 is at 7:00am tomorrow. I am ready  -  bring it on! I am interested to see what happens this time. Dr. Hong said to expect fewer doses and a heavier response this time. Just like last time, my main goal is to stay out of the ICU (especially since I have a fabulous private room). So far I’ve seen Dr. Hong (he’s on call tonight) and a bunch of fabulous nurses who have stopped by to welcome us back. While of course I don’t want to be here receiving treatment for longer than absolutely necessary, it will be sad to leave knowing that I will not see the wonderful people here who have come to mean a lot to me.  Although I’ll be back frequently for scans so there will always be chances to come to the unit to say hello. Dr. Schaub is on vacation with his family, so another Fellow, Dr. K, will be my primary doctor for this round. He was here during my last round, filling in for Dr. Rossati, so we already know and like him.  
I’m so happy this is the last round of IL-2.  I am thankful that it’s working and all of the side effects are of course worth the outcome, but I am happy not to ever do it again.  And I am happy not to have to leave sweet baby Kai again. He is such a sweetheart and every second with him is sheer pleasure. It will be so wonderful to be home after this round, knowing that we are finished. Even if it doesn’t completely cure me (which it will), at least I know that I have some time before we would have to think about doing something else (which we won’t ever have to think about since the IL-2 will cure me).  This is just a short post to say I am here and ready to go!  I meant for today’s post to be longer and more meaningful, but it’s late and I’ve already received the sweet, sweet injectable Benadryl. My mind is mushy and my typing fingers aren’t cooperating with my thoughts. Tomorrow marks the beginning of the end. Thank goodness for that.
Today I am thankful for all of my extraordinary doctors and nurses; the IL-2 that will cure me; my mother- and father-in-law who are taking care of Kai and much more; all of our wonderful friends and family; and, as always, my amazing Jeff and perfect baby Kai. Only a few more days apart in exchange for a lifetime together.


  1. Love you, sweet Jamie, Jeff & Kai. Jamie, I have a wonderful pic of Jason feeding you a bottle when you were a newborn. Your Mom is hovering on one side, and me the other. So much love pouring on you. And now it's multiplied hundreds of times over, coming back to you from all the people your remarkable and wonderful personality has touched. I know it will carry you well and peacefully through the next few days - and past that into the rest of your life. Love, Aunt Jan

  2. Hi Jamie~
    Yeah for you! Private room! Continuing proof that everything is relative and, indeed, the little things in this world can mean so much.
    My prayers for you include whatever is needed to make this last round your biggest hurrah towards being cured! Looking forward to the good news!
    God's Blessings to all of you.
    As always, many hugs and much love. ~Judy

  3. Jamie,
    Your Louisiana contingent is rooting for you and sending positive vibes your way! We know you will make it through your final round of treatment with the same strength and grace with which you have faced earlier rounds...and we look forward to celebrating with you and the rest of the family at the end of this month when we are in DC again! You go, girl!!!
    Love, Ayan and Mike

  4. Young lady, You are such a beacon for your family to see. Keep the faith. IL 2 final chapter sounds good. We are all awaiting the great news with high anticipation. Here's hoping the sides will not be too brutal for a warrior like you. Praying to keep you out of ICU!!!! Have the best week you can have. God bless.


  5. Jamie,
    Hope Wednesday went well. Your bravery is beyond words. Your army of supporters is with you. Still holding you in the light of Love.
    With love,

  6. Love to you from your supporters in NC. We are back for IL2 round 4 on Monday.

  7. Hope you are resting and relaxing at home with family and friends enjoying the beautiful weather! I'll be thinking of you on Saturday as "Team Jamie" begins their walk...I have a wedding to shoot or I would be there too. Keep up the good fight lady!

    "No matter how long the winter, spring is sure to follow." ~Proverb

  8. I'm in Muscat, Oman with the Foreign Service and just now heard someone on FoxNews comment about your battle. You are in my prayers. Never give up hope and stay strong...probably many many more have you in their thoughts and prayers than you realize.


  9. Dear Jamie, Please know that this is intended to promote your well being. But trusting "the Universe" to come thru for you. Better to trust the Living God who created the universe, by name": "...for you who revere my name, the sun of righteousness will rise with healing in its rays." So says the LORD Almighty! And his name, is Jesus Christ aka Yeshua Ha-Mashiach (the Messiah). Call on Him by name, and trust in Him as your LORD and Savior. Then you know to whom you are speaking. Always better when folks can know each other by Name. Speak, knowing your position -- He is your LORD and you are His servant -- and you should start to see things more clearly. Praying for you, dear Jamie! Let me know if you'd like to get further Spiritual counseling, to lead you out of those nightmares and out of the cancer! Remember, they're using powerful painkillers that can produce those nightmares, too. Just went through something similar myself. Satan is a liar and he will try to use those nightmares to tell you lies about who you are -- to keep you from seeing you're a child of God. As such, you have earned the right to call on Him as "abba" -- our equivalent for that being "Daddy". An intimate, kind, loving and powerful God. Only He can help you! Praise God! Bob M