The first few doses hit me like a ton of bricks. The first one brought intense chills, vomiting, fever, and severe discomfort. The second dose was more of the same plus shortness of breath. They went ahead with the third dose last night but we skipped the regularly scheduled dose this morning and now I’m in the ICU for low blood pressure and significantly decreased urine output. Dr. Schaub said that because my blood pressure was so low, proper amount of blood was not getting to the kidneys. After being stabilized in the ICU, we did the forth dose at 4:00 pm. So far it’s ok. The doctors are doubtful there will be a fifth. It is very hard to write and Jeff is writing as dictation because I just wanted to let everyone know I’m ok. I am still in the ICU and we don’t know what is going to happen next.
Today I’m thankful for the vast resources of NCI. All of the nurses who are loving and caring for me, my doctors who will cure me, my amazing friends and family, and as always my wonderful husband Jeff who has to go through so much for me and my perfect baby Kai. I will be home soon little one.
Jamie, so sorry you reacted so quickly with this round. You are just surrounded by so much hope, prayer, love and grace. Keep up the fight. We are all here for you.
ReplyDeleteLBR
Jamie: We're praying for you! You inspire us all. Kai and Jeff are beyond blessed to have a mommy/wife that loves them like you do. Met your mom recently - that was a another blessing:) Remember at any given time, we are thinking and praying on your behalf!
ReplyDeleteAnd, I am grateful for my beautiful, courageous, loving daughter who is entrusting her perfect little Kai to me. Sleep well, dear one, you are wrapped in love as is your little Kai. And, he's also wrapped in a really tight swaddle! : )
ReplyDeleteYou are doing great Jamie. Your strength and determination is beyond believable!
ReplyDeleteI am so very very thankful for every single person who is praying for you and loving you.
Talked to your Mom earlier this evening... Kai is in wonderful hands :-)
Rest well.
Keep up the fight girl. The boys and I pray for you every night. Your story inspires me to be a better and more patient mom.
ReplyDeleteJamie, you are such an inspiration! Your health, recovery and return home are continually in my prayers. Keep up your faith and courage, you will be delivered :)
ReplyDeleteShani
Hang in there Jamie! Focus on the month that you will be getting to be with your little Kai and Jeff. Your positivity is spreading to others and helping to change their lives. You are stronger than this cancer. You will triumph!
ReplyDeleteSending a big cyber hug for you and Jeff. XO
Missy
Stay strong Jamie- we're all thinking about you, sending positive thoughts/vibes and lots and lots of prayers. Keep up the fight- you will be victorious!
ReplyDeleteLove you!
-Donna
Maybe your body just knows you don't need as many doses this time - especially because you rocked the first round! It sounds like you have great doctors and nurses that are really trying to keep a good balance of fighting the cancer and keeping you strong. It really does make me happy that you speak so highly of your nurses and the quality of patient care that you are receiving. Unfortunately, I have heard stories of cancer patients that did not receive this level of care, comfort and concern. I continue to think of and pray for you and all of your family!
ReplyDeleteI was struck by your line, "We don't know what is going to happen next." You know that none of us really knows what is going to happen next. All of us should step into the unknown future with as much faith and courage as you have. The love and prayers of many people go with you, and of course you go with God. As Olivia quoted Churchil, when you're going through hell, keep going!!
ReplyDeleteGlad to hear that Jeff is making himself useful. Kidding of course. Keep up your great focus and continue to heal.
ReplyDeleteLinda had talked to your Mom last night and shared what was going on. My first reaction was "wow, Jamie will be so MAD if she cannot proceed with this second round."
ReplyDeleteSo I am glad to hear they are watching you closely and you were able to get at least a few more doses done. You are an amazing fighter!
You are in my thoughts and prayers everyday. My inspirational quote for you today comes from your own words. Thank you for writing and sharing with all of us. You are such a great light in the world!
ReplyDeleteI was especially thinking of your words late last night as I was doubled over on the bathroom floor in pain from my celiacs disease and I thought of what you wrote last," Millions and millions of people have suffered physical torture on levels so far above anything I have ever come close to even in my worst nightmares. It is this suffering I will remember anytime I want to complain about my own."
I was diagnosed as HEPATITIS B carrier in 2013 with fibrosis of the
ReplyDeleteliver already present. I started on antiviral medications which
reduced the viral load initially. After a couple of years the virus
became resistant. I started on HEPATITIS B Herbal treatment from
ULTIMATE LIFE CLINIC there website is https://ultimatelifeclinic.com) in March, 2020. Their
treatment totally reversed the virus. I did another blood test after
the 6 months long treatment and tested negative to the virus. Amazing
treatment! This treatment is a breakthrough for all HBV carriers.